Taylor is a rare disease advocate, author, and founder of Remember The Girls — an international nonprofit dedicated to supporting women and girls who carry X-linked genetic disorders.

Her work began in childhood after losing her father to adrenoleukodystrophy (ALD) and discovering she was a carrier, and has since evolved into global policy advocacy, biotech consulting, and patient engagement.

She has successfully influenced newborn screening legislation, mobilized patient communities, and reshaped how industry listens to those most affected.

What She Stands For:
Taylor believes that those living with inherited conditions deserve visibility, respect, and a central voice in research and care.

Focus: Rare Disease Advocacy • Patient Engagement • Genetic Justice • Storytelling

Location: Czech Republic